We spent all day at Geisinger today with Jack-Jack. It was a good, good day!! He showed his "warrier face" during his blood draw (only one stick!), and only complained a little bit through his ultra sound. Dr Sumfest was pleased with the decrease in hydronephrosis of both kidneys, though the ureters have not shrunk at all. We asked about urodynamics and Mag 3 but he said the tests wouldnt give us any relevant info at this point. He thinks that the less invasive we are right now, the better. We don't want to kick off infections again. He said IF there are potty training issues, we can try Ditropan next year when we see him. It would help the muscles of the bladder. Dr Muchant was very pleased with a creatnine of 0.4 and BUN 17... He went.from CKD stage 2 back
wards to stage 1!!! His left kidney is 6 cms and is meatier (healthier) than the right. The right is 5.5cm. Last visit she told us to be prepared for transplant in the future... today, she said statistically, he's down to a 1/3 chance of needing it. WOW!!!!! Because his urine specific gravities are no longer low (his entire UA dips are WNL) he defintaely no longer has Diabetes Insipidus... the condition that we were told was life-long. So, we follow up in a year to watch labs and recheck US. She said she doesnt care what his ultrasounds look like, as long as his function stays good. She also thinks that his eatting problems are not kidney-related. She's very happy with his growth, says to continue Pediasure or whatever it takes to keep him growing.
BTW... as I was browsing the web for new baby names, I learned that Jackson means...
"God has been gracious; has shown favor" - how fitting.
BTW... as I was browsing the web for new baby names, I learned that Jackson means...
"God has been gracious; has shown favor" - how fitting.
Im thinking this is going to be a good year!!! :)
2 comments:
Awesome to hear that! Way to go, Jack!
Such wonderful news!! And the meaning of his name is so true for him! He has surprised the doctor since he was in utero. I am so pleased that his infections have decreased soooo much! Rebecca always had issues eating....very picky! She was still very healthy and rarely got sick. She was one of those kids that got 100% attendance most of the years in elementary school! Doctors worried about her lack of weight gain at first, but when we moved and changed doctors it was never mentioned it again. Looking forward to seeing what they all say in a year!
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