*Meg's Bridal Shower*
4/15/2012
Spring Soccer Season Success
Both girls made the teams' season opener goals!!!!
Whoo Whoo!!!
Jenni was way excited...
She loudly yelled "You have to take me to Rita's, Daddy!!!!"
Poppop is her coach and Jason is one of the assistants!!!!
Look at the pride on her face!!
Look at the pride on her face!!
This makes me even more proud... the determination in her face.
Plus... she is just the most adorable child on Earth!!!
Jaylee's soccer is so "real" this year... they pass the ball, have a goalie and seem to understand the game!!
She started as striker, and scoared within the first few minutes!!!!
LEFT side, LEFT foot and FAR post!!!!!!
GO JAYLEE!!!!!!!
4/13/2012
Pine Derby Grand Prix
And the winner is....
Jennibelle!!!!
(first place in design)
She totally came up with the idea, name and design concept of
The E-racer
She was totally surprised when they called her name for first place!!!
The same is for Jaylee... she originally wanted a hamburger, but coudn't figure out how-to, so the idea of "I'm the Weiner" was born...
Unfortunately the actual hot dog was too heavy - she and Jason were busy trying to hollow it out when the judges were picking design winners.. and in the end she had to remove the hotdog for the race... bummer!!!!
4/12/2012
Feeding Issues
Info for the Therapists...
*Breast feed x 4 weeks (stopped in ICU)
*Nestle Good Start - only 2 ozs Q 2' for many months- would wake Q other hour through night until ?10 mos old
*Bottles always had to be room temp or colder
*Never ate baby food - hated it, we made soups and stews
* Gags a lot when eatting, will also shove his hand down his throat
*Has always taken many meds PO
*Switched to whole milk without issues
*Weight remains 5th percentile, height 28th
*Likes salty foods... chips and french fries
*Curretnly taking only bottles - 16oz Pediasure mixed with 16-24ozs whole milk
*Has diarrhea a lot b/c of abx - occas on soy form/milk
*Acidophilous BID or should we switch
*Do kidney kids have food aversions/eatting issues?
*Is there another GERD med that won't gag him like Prevacid?
*Drinks a lot of water each day - 8ozs?
*update... speech therapist thinks that he has bad reflux. he's been on Prevacid x 10d and at last night and today at her office. She will follow us weekly x 2 to be sure. He chews, swallows & sucks just fine. YAY!!!
*update... speech therapist thinks that he has bad reflux. he's been on Prevacid x 10d and at last night and today at her office. She will follow us weekly x 2 to be sure. He chews, swallows & sucks just fine. YAY!!!
Urethral Update
US went well yest - kidneys and ureters show no chage (which is good b/c we were worried that the UTIs may have been scarring the kidneys). The surgeon basically told us that he does not know why Jackson is getting UTIs again since his hypospadia and stricture repair. He stopped his Bactrim and will take him to the OR check for a stricture again, but Jackson's bladder was completely empty on US, so he does not think that a stricture is causing the UTIs, regardless.
So it's good news and bad news, I guess.
We jsut have to ride out these UTIs until he grows into his ureters or until he is big enough to handle ureter tapering and reimplantation, which is a MASSIVE surgery.
He's been moved up to 2 bottles of Pedisure a day since he was not eatting, but this morning, he ate better than ever for me, maybe it had something to do with the impending UTI??? Not sure though, he did not eat for almost 2 weeks! We see many specialists the next few weeks re. his weight gain and eatting.
busy busy busy!!!!!!
4/10/2012
Failure to Thrive
Of all the damn diagnoses this kid has on his paperwork, this is one I never dreamed would end up on it...
*Failure to Thrive*
Sends chills up my spine just listening to those words... it always make me think of...
DEATH!!!
This sucks!!
Hopefully the speach therapy, early intervention, and pediatric nutritionist can help us.
The more people I talk to, this is apparently common in kidney kids.
I've heard that food does not taste good to them, metallic.
Not sure how these kidney Moms know this, when our Ped and Nephro Drs never mentioned it.
Have I mentioned I am having total trust issues this year?
I pretty much think that every Dr out there is full of crap.
Jackson gets an ultrasound tomorrow of his huge belly and then, I suppose, his surgeon will tell us the bad news. And then, we'll schedule another surgery. And then we'll repeat this process another bunch of times.
*Insert a word portraying just how angry and scared I am here*
4/09/2012
Easter in Philly 2012
What a fun fun fun weekend!!!
We left Jackson at Nan and Poppop's and headed to Philly with the girls for the weekend.
Our first stop was the NJ Aquarium and we had a blast!!!
Jaylee was absolutely TERRIFIED to be "in" the shark tank with Sharks swimming all around us.
She was afraid the glass tunnel would collapse.
I remember being in 12th grade and terrified of the same thing!
Jenni was as free as a bird and loved every second of it!
We all got to touch many animals... slippery sting rays, jellyish sea cucumbers, hard starfist, rough sand sharks and more.
We saw a 4D movie that had some cool effects, though the story line was awful.
We also ate the freshest soft pretzels ever!! YUM...
Right across the river was Philly, so we were doing our Gangsta stance...
We couldn't be tourists in Philly without a Cheese steak...
Geno's it was!!
Then we checked into our fancy-pants Hotel that only had Valet parking!!!
It was the first "skyscraper" in America - it use to be a bank building and much of the decor is original.
And the view from our room was AWESOME! Esp at night, when there was a red moon over the river.
The girls behaving in the fancy hotel...
And then there's Mama...
Then we carried on....
A short 6 block walk to The Liberty Bell.
The line was HUGE so we just saw it through the window...
Jenni wanted to explore the subway, though we were a little nervous about it!!!
And then we headed into the National Constitution Center for Jason to learn more about his man-crush, George Washington.
Jenni actually signed the Declaration of Independence...
We spent the evening back at the hotel, relaxing, posing and swimming.
Dinner at Hard Rock - poor Jenni could barely keep her eyes open!
However... Jenni then proceeded to wake up every hour seeing if the Easter Bunny had come yet. I haev no idea how he managed to sneak in between her checks!!! But... alas... by 4:30am he had been there... so there we were, eatting candy at 4:30AM!!!!!!!
Sun morning we had breakfast in the room and then headed back to Liberty square...
baeutiful weather and no crowds!
We toured Independence Hall which was very similar to the interior of our Fram House!
And then we boarded our double-decker tour bus - I HIGHLY recommend it!
It was so cool to drive around on top without a roof and just get to look around, rather than worry about driving. The architecture is soooo amazing! And we hit just about every part of town!
The girls even got to eat from a "tin can on the side of the road" on the tour too! (food cart)
The girls also enjoyed sharing the camera for our first 1/2 ride - and I have 200 pix of downtown Philly to prove it!!
.
Our final destination was The Franklin Institute.
Here are the girls in the giant heart - my favorite exhibit growing up!!
Jaylee was trying to do the "cell phone disco" - we were clueless, but apparenlty it is a phenomenom!
After we saw the expensive and over-rated Dinosaur travelling exhibit, the girls were in a Roaring Contest...
Jaylee was the only one brave enought to try the Skybike, 3 stories up in the air.
Right before leaving, we saw a show in the Planetarium.
I was not terrified this time, like I was when I came here with school in 5th grade.
Surprisingly, neither of the girls were scared either!
Jennibelle LOVED to participate, since she go the scream out her answers.
It was awesome!!!
Thanks again to Nan and Poppop for our citypass tickets and for our hotel (Our Christmas gift)!!
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