I am soooooo bored of hospital posts!!!
Sooooo bored!!!!
BUT... I want to keep track of things while they are fresh in my mind.
So... no fancy sentences, just the facts...
Urethral reconstruction surgery on Thurs 10/13...
D/C'd on Sat 10/15 with croupy cough, Pox 100%, LCTA, decreased input, diarrhea, irritability, and abd cramps 4 -5 x's and hour.
Sat night his cath suddenly stopped draining and was full of blood - straight to ER at HOLRMC where it was irigated by nurses and a small clot was removed. Bladder scanner read 234cc but unable to get any more out, so transferred to Geisinger ER in the middle of the night. We saw Ped Uro Resident who irrigated catheter ALOT and used an US machine to show that there was no urine in bladder. Aware of pain, spasms, diarrhea and decreased input. He is an idiot... he told us that our Nepho Dr was wrong and that no kids concentrate urine, and that we over reacted when he suddenly had a decreased in urine output of cather, even though clots were removed and then it began to drain again. He explained that Jackson should only urinate 4-8 cc/hr. D/C'd home 0500 on Sunday 10/16.
On Monday 10/17 Pediatrician was notified that Jackson had barely eaten thru the night and was dehydrated - Direct Admit to LGH. A NG tube was placed to correct dehydration with Pedialyte. Diarrhea and terrible cramping cont'd thru teh day. BMP showed Na and K stable, CO2 very low at 16 and creatnin up to 0.6. Cdiff was neg, UA was dirty and Urine culture is still pending. He was kept on Amox to treat his last UTI and started on Omnicef to treat the probable new UTI. On Tues, 10/18 he was less crampy and irritable, able to take a few ozs orally and was D/C'd home. To see Dr Sumfest and have his catheter D/C'd on Weds 10/19.
Jackson and his NG tube...
Jackson and his NG tube...
I have sooo many complaints about the "Pediatric Urology" staff at Geisinger that I am looking forward to our second opinion in Nov at John Hopkins.
Update 10/19: Urine culture was negative so Urology D/C'd all antibiotics and restarted daily Bactrim. Will have f/u US and appt in 4-6 weeks. Dr D/C'd catheter without problems... peed twice and then we were sent home. We also saw Pediatrician for cont'd diarrhea and decreased intake - will switch to soy formula x 7 days.
Update 10/19: Urine culture was negative so Urology D/C'd all antibiotics and restarted daily Bactrim. Will have f/u US and appt in 4-6 weeks. Dr D/C'd catheter without problems... peed twice and then we were sent home. We also saw Pediatrician for cont'd diarrhea and decreased intake - will switch to soy formula x 7 days.
2 comments:
These posts may be boring for you, but I like them. Keep writing them so us people far away are kept informed! :)
They are not boring to me, either! You are so smart to keep a record of all this! It tells a lot of the moment and together over the past 7 months it gives such an accurate picture of all he has been through! I, too, an anxious to hear about you 2nd opinion from John Hopkins!!! Hang in there....despite human error (or maybe because of) I feel angels are watching over Jackson and you all!! Praying he continues to well!!
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