Tues Jan 10th 8pm
In 12 hours, Jackson will be lying on a table, not breathing on his own, with his penis degloved.
In 12 hours, Jackson will be lying on a table, not breathing on his own, with his penis degloved.
Aaaaaaaaahhhhhhhh!!!
The girls headed off to Nan and Poppop's for two days.
Jason said that he and Jackson had a great night together...
Jackosn was laughing, wide awake and happy.
He got his antibacterial soap bath and then was asleep by 8.
We'll wake him at midnight for his last feeding before surgery.
In the morning, we'll be up at 4, on the road by 5, check in at 7 and off to the OR at 8.
See you on the other side!!!
****************************
Weds Jan 11th 5am
Weds Jan 11th 5am
He must have been excited for surgery today because he's been up since 2:30am!!!
He sleeping now in the car.
I will not be surprised if we all die one day in a car wreck with Jason behind the wheel!!
***************************
8:12am
There he goes...
My son, my heart...
There he goes with complete strangers.
There he goes because I sent him there.
There he goes confused as to why we are not following.
There he goes...
There he goes to sleep.
There he goes to be invaded.
There he goes to heal.
There I go to cry.
There I go to eat.
There I go to wait.
There I go to cry.
There I go but I want to be with him, where a Mama belongs.
There I go to wait until I can go see him.
*************************
8:58am
The procedure has officially begun...
there is now a picture of a scalpel next to his assigned number on the illuminated board...
How comforting (insert sarcasm).
Not sure WHY it too them 45 minutes to actually get started, guess we'll find out soon enough.
************************
9:29 am
He sleeping now in the car.
I will not be surprised if we all die one day in a car wreck with Jason behind the wheel!!
***************************
8:12am
There he goes...
My son, my heart...
There he goes with complete strangers.
There he goes because I sent him there.
There he goes confused as to why we are not following.
There he goes...
There he goes to sleep.
There he goes to be invaded.
There he goes to heal.
There I go to cry.
There I go to eat.
There I go to wait.
There I go to cry.
There I go but I want to be with him, where a Mama belongs.
There I go to wait until I can go see him.
*************************
8:58am
The procedure has officially begun...
there is now a picture of a scalpel next to his assigned number on the illuminated board...
How comforting (insert sarcasm).
Not sure WHY it too them 45 minutes to actually get started, guess we'll find out soon enough.
************************
9:29 am
First call from the OR:
They are starting the reconstruction repair!!!
YAY!!!
Good thing I took a pre-op picture!!
Good thing I took a pre-op picture!!
************************
10:53 am
Why haven't they called us?
they said they'd call every hour.
**************************
11:20 am
He is in PACU and doing remarkably well!!!
Seems that the Caudel block worked this time.
Boy is "it" U-G-L-Y
But, he is awake, sipping TINY sips and looks good.
Praise God.
They did find a small stricture which they fixed (seems the stricture from before came back).
They did a test that showed that he did NOT have reflux.
His bladder is almost the right shape now, no more snowman!
YAY YAY YAY YAY YAY!!!!!
*************************
12:46 pm
Waiting for Tylenol #3 and D/C instructions!!!!
**********************
4:05 pm
Home, ate a total of 5.5 ozs.
Relaxed and hanging out of his baby swing watching TV.
Was very flushed, but it has gone away - not sure why.
********************
9:00 pm
Little man just fell asleep after a very rough evening.
Grateful for Tylenol #3 right now.
Changing his diaper is actually terrifying!!
He's eaten good all evening.
*********************
Thurs Jan 12th 8 am
I'd say that we had a successful night.
Jackson slept with us and slept quite well.
We woke 4 times for feedings.
We didn't change his diaper b/c he was sleeping well and now the bed is soaked.
Changed up our dipaering technique and I think this will be easier.
He is quiet bruised up today.
He just spent 45 mins playing in th efloor with his toys...
crawling and pulling him self - like he never had surgery.
Makes me nervous!!!
Now he's drifting off to sleep in his crib.
Still no dirty diaper, so we'll try plain Tylenol next time and see if the pain is still controlled.
Time for a nap...
Pic of Day 1 post-op:
**********************
3:50 pm
The pain medicine keeps him comfortable, but as soon as it wears off, he stiffens up and whines.
He is truely remarkable...
you look at it and cringe, then redipaer him...
and he takes off to play.
The girls came home for the afternoon but are going back to Nan and Poppop's for the night, which is really helpful!
We have an appt on Weds to have the catheter removed.
************************
7 pm
Jax spiked a fever of 103 - off to LGH ER we go...
prob a pneumonia (breathing fast, retractions, wet cough sometimes)
***********************
Fri Jan 13th 12:42 am
We were D/C'd with the explanation that the Drs don't know what is causing the fever... yet.
So... they would not do any sort of treatment yet so we decided to NOT be admitted, for now.
Poor poor poor boy. Last surgery a similar thing happened - turned out to be Roseola.
How does a kid get so unlucky, that he catches a terrible virus after 2 surgeries in a row?!?!??!?!?
Good thing is that labs were Perfect!!!
(cr 0.4, BUN 7, Na 138, WBC 11)
Fever stayed abov 102 the whole time, even though he still gets Tylenol #3 Q4.
In site is looking worse... not it's more swollen and bruised (Ouch) THOUGH it does not seem to hurt too badly!!
We also ended up giving him a Glycerin suppos since he hasn't had a dirty diaper since the 10th and seems to be struggling with lots of gas.
My heart is once again broken...
there is nothing I can do and I am again reminded of the guilt I live with every single day.
*************************
11:45 pm
we arrived on LGH's pediatric floor.
I can honestly say that I enjoyed our 3 months away from this place!!
Here's hoping things go well...
*************************
3:36 pm
Jackson has mastered the
"Why are they doing this to me Mama? Please make them stop!" eyes.
Those eyes are forever etched onto my heart.
On a good note, the IV was successful on the 2nd stick, His Salt levels are staying normal despite eatting only 5 onces in 18 hours, his creatnine is only up to 0.5, his fevers are down to 100', his breathing has improvevd and he's been able to nap They are treating a possible UTI until the culutre comes back tomorrow.
*************************
Sat Jan 14th 6:30am
I HATE having to go to work when my kids are sick.
I live with guilt about leaving my sick kid to go take car of someone else's kid
And even more than that, I HATE coming back to the hospital to find him a mess.
It's not Jason's fault... they got ZERO sleep until 4am...
Jackson has bad diarrhea, his diaper was full, he was naked and freezing, his Tylenol at 5am was never given, he drank only 1/2 oz through the night and his bed linens were covered in a poopy residue.
His fever is now only 100.5, we gave the Tylenol, his diaper is changed and they got his morning labs on the first stick.
Doesn't look like we'll be going home today - he only took 1 oz of fluids by mouth last night:(
*********************
10:00 am
I was thinking...
maybe this is a blessing and God's way of giving Jackson a break -
I KNOW that sounds crazy BUT...
He is an active little boy that likes to be on the go SO maybe if he wasn't feeling completely crappy and needing to sleep all day, he'd just be miserable from not being ablt to get around and in pain from his wound.
Maybe...
The wonderful folks here at LGH have LOST HIS URINE CULTURE SPECIMEN so
the Doctors have no choice but to treat him for a UTI.
(This only stinks b/c the Rocephin has given him terrible diarrhea!)
The Dr also thinks that he may have RSV, so they'll be here soon to swab his nose for that test.
He did just eat 2 ozs for me!!!!!
I am waking Jason soon and heading to my parents for some home made soup and muffins (yum).
I wish a certain someone would stop calling me with her problems right now, when my week isn't going so great itself. Though I think she's figuring it out on her own, since her last phone call started with "How is he doing?" before shotgunning straight to her issues.
Oh well...
**********************
2:20 pm
RSV
As far as I am concerned, we could have and should have known this before we were d/c'd from the ER on Thurs night. But, it's not like it makes a big difference anyway. There is no treatment. Perhaps though, they would not have been so aggressive with the UTI treatment.
We'll never know!
The girls were here, but had to leave b/c we're in isolation now (fun!!!).
Jenni takes it so darn hard when our family is split up -
no matter how exciting we make "vacation week at Poppop's" sound.
Jackson still has not eaten a thing in hours...
the nurses will try to feed him later -
Good Luck with that,
Little man is very anti-anyone-but-Mama-or-Dad right now!!
Looks like we'll be here a few more days.
*************************
8:45 pm
Jackson is struggling to breathe now - very coarse breath sounds, he's also cool and clammy.
The Dr is coming in to reassess him.
Definately stable, just not as good as he was a few hours ago (After his pain pill when he decided to eat 5 ozs and start playing!!!)
It's gonna be tough leaving for work in a few minutes!!!
************************
Sunday Jan 15th 6:15 am
I just got back from work. Not hearing anything from Jason after midnight is a GOOD thing.
Both boys are sound asleep, and Jackson is not struggling at all.
They'll be in at any moment to do morning labs.
Now, I need to join them in dreamland...
***********************
12:30 pm
He's been nibbling at his bottle since they D/C'd his IV fluids.
In 5 hours he ate 5 ozs!!!
No longer having fevers.
If he conts to eat, he'll go home tomorrow.
They D/C'd UTI antibiotics b/c of terrible diarrhea and today's CBC pointed towards a virus only.
Creatnine is back to 0.4 , THANK GOD!!!
He still requires Lortab pain meds for uncomfortability.
Jennibelle is a mess with us being a part:(
*************************
Mondy Jan 16th 9:24 am
We were os happy to come yest around 5pm... we even stopped and got dinner on the way.
When we arrived, however, he went bananas...
screaming, crying so we had put him in the tub only to have him turn that horrble mottled look but 10x's darker than I've ever seen. I was in true panic mode at that point.
We fianlly go thim calmed down and eventually even to sleep, but through the night he::
*re-spiked a fever of 101.4, *drank 3 ozs than vomitted it all back up, *drank only another 4 ozs as of now, *was obviously uncomfortable despite Tylenol #3 and *slept only for 1 hour at a time.
So, his Urologist is aware and we have an appt with his Ped at 1240.
EXHAUSTION is in FULL effect.
Lickily, my parents kept the girls another night.
Pic pf day 6 post-op:
*****************************
1:52 pm
I can not wait until this is a distant memory!!
Our Pediatrician removed his catheter so that we didn't have to make the trip up to Geisinger.
We're hoping this will help with his overall comfort,
I'm excited for the girls to come home in a few hours, though I am not excited for all of their energy.
Maybe I'll have them put it to good use and help get this house back in order!!
Hopefully he eats a little something in the next hour or so, so that we can stop worrying about dehydration - again.
*************************
Tuesday Jan 17th 1 pm
I am happy ot say that Jackson is "better"
Still not good, but not real bad anymore.
He's more junky in his nose and lungs than he had been, as the virus workes it's course.
He's not eatting/drinking enough, but I think that he is taking in enough to keep from another hospital admission today.
He is no longer feverish, actually feels a little cool to me.
He has not had pain meds since the middle of the night.
He is definatley in better spirits though... was smiling, playing and eatting soup at noon.
We go to Geisinger early tomrrow morning for another eval.
It was so fun last night having the girls home and playing charades!!!
********************
Wednesday Jan 18th 4:15 pm
We got the A-OK from Jackson's surgery.
So we do not go back to Geisinger until the end of May-
YAY YAY YAY!!!!
His breathing is still rough... very wet cough that sounds like whooping cough.
He also has terrible slimy diarrhea, Which the Drs say is from all the mucous he's swallowing.
BUT he ate close to 30 ozs and was very playful today also:)
Hoping the diarrhea does not dehydrate him and we can soon be done with this whole mess!
*************************
Thursday Jan 19th 7:42 am
Well... he slept well through the night, so hopefully today will be the day!!!
*****************************
10:08 am
Fevers are down to 100!!!!
Cough is less and less (though it still sounds bad)
Nose is running and he's biting everything and whiney at time, but I think that it has to do with the FOUR teeth budding through the top all at once, poor kid!!
Off to get some grocery shopping done!!
Pic of his treat from the grocery store:
**********************
Friday Jan 20th 8:44am
BAD night for Jackson!!! He went to bed at 6:30pm very whiny. He was wimpering at 10:30pm and COLD.
COLD .
COLD.
COLD.
COLD.
COLD.
I got sooo sick to my stomach when I touched him.
Memories came flooding...
tears came flooding...
heart started to race...
and nausea hit me like a punch to the gut.
He was pale, cold, clammy-ish, whiney and wouldn't eat.
Off to LGH we flew.
He started to warm up and act better once we were settled in our room.
Ears were normal, Chest xray was either a pneumonia or RSV infiltrate, temp was stable at 98.4, and cath urine was norm.
The ER Dr and Hospital Pediatrican saw him and did not think that blood work was needed -
good and bad thing.
Bad, he gets stuck.
Good, we actually know that it is NOT pneumonia and that his levels are ok AND Mama can calm down.
So, we went home, relieved yet cery confused.
Jump to 6am when he woke very whiney again.
And...
his
diaper
was
completely
DRY.
That is 5.5 hours of not peeing from a boy that just-last-week would pee every 30 mins or so.
What the Heck???
We called LGH - "Go to the nearest ER"
So we headed to Heart of Regional Medical Center.
While answering the DUMB questions and signing 12 papers during registration BEFORE a medical person evaluates you, he obviously peed b/c he became much calmer.
So, the ER Dr that came in 45 mins later says "What do you want me to do for him then?"
Not rude, but more jokingly.
Perhaps I have become a crazed Mama who is terrified of having her son die??
Perhaps I have lost all forms of nursing judgement??
Perhaps I have become a basket case??
Or, just perhaps, I know my son better than anyone else on this really-quite-huge planet and I think that something is wrong. Perhaps...
So, they did a Flu swab (neg), told me that b/c he was once again 98.6 degrees and very playful, blood work was not needed. He had another huge bought of Diarrhea while there and I had them weigh him - He has lost 14 ozs since Monday. She said that it is obviously b/c of the diarrhea and the fact that he is still only eatting 1/2 of what he usually does.
Still, 14 ozs seems like a lot to me and I am worried enough that he will see yet another Dr at 9:50.
I am praying that she will agree to bloodwork and that it will NOT reveal dehydration.
Will anyone out there reading this pray too????
**********************
9:55 pm
Blood work showed that WBC increased only to 12.8 and still leaned towards a virus.
Na, cr and all other labs were WNL.
Thank YOU, Jesus!!!
Jason just texted me... Jackson has eaten 16 ozs since I left for work 6 hours ago!!!!
********************
Saturday Jan 21st 10:30 pm
Jackson had a darn good day today.
I hope this is my last entry to this never-ending-string-of-bad-helth-luck-for-him!!
********************
He is in PACU and doing remarkably well!!!
Seems that the Caudel block worked this time.
Boy is "it" U-G-L-Y
But, he is awake, sipping TINY sips and looks good.
Praise God.
They did find a small stricture which they fixed (seems the stricture from before came back).
They did a test that showed that he did NOT have reflux.
His bladder is almost the right shape now, no more snowman!
YAY YAY YAY YAY YAY!!!!!
*************************
12:46 pm
Waiting for Tylenol #3 and D/C instructions!!!!
**********************
4:05 pm
Home, ate a total of 5.5 ozs.
Relaxed and hanging out of his baby swing watching TV.
Was very flushed, but it has gone away - not sure why.
********************
9:00 pm
Little man just fell asleep after a very rough evening.
Grateful for Tylenol #3 right now.
Changing his diaper is actually terrifying!!
He's eaten good all evening.
*********************
Thurs Jan 12th 8 am
I'd say that we had a successful night.
Jackson slept with us and slept quite well.
We woke 4 times for feedings.
We didn't change his diaper b/c he was sleeping well and now the bed is soaked.
Changed up our dipaering technique and I think this will be easier.
He is quiet bruised up today.
He just spent 45 mins playing in th efloor with his toys...
crawling and pulling him self - like he never had surgery.
Makes me nervous!!!
Now he's drifting off to sleep in his crib.
Still no dirty diaper, so we'll try plain Tylenol next time and see if the pain is still controlled.
Time for a nap...
Pic of Day 1 post-op:
**********************
3:50 pm
The pain medicine keeps him comfortable, but as soon as it wears off, he stiffens up and whines.
He is truely remarkable...
you look at it and cringe, then redipaer him...
and he takes off to play.
The girls came home for the afternoon but are going back to Nan and Poppop's for the night, which is really helpful!
We have an appt on Weds to have the catheter removed.
************************
7 pm
Jax spiked a fever of 103 - off to LGH ER we go...
prob a pneumonia (breathing fast, retractions, wet cough sometimes)
***********************
Fri Jan 13th 12:42 am
We were D/C'd with the explanation that the Drs don't know what is causing the fever... yet.
So... they would not do any sort of treatment yet so we decided to NOT be admitted, for now.
Poor poor poor boy. Last surgery a similar thing happened - turned out to be Roseola.
How does a kid get so unlucky, that he catches a terrible virus after 2 surgeries in a row?!?!??!?!?
Good thing is that labs were Perfect!!!
(cr 0.4, BUN 7, Na 138, WBC 11)
Fever stayed abov 102 the whole time, even though he still gets Tylenol #3 Q4.
In site is looking worse... not it's more swollen and bruised (Ouch) THOUGH it does not seem to hurt too badly!!
We also ended up giving him a Glycerin suppos since he hasn't had a dirty diaper since the 10th and seems to be struggling with lots of gas.
My heart is once again broken...
there is nothing I can do and I am again reminded of the guilt I live with every single day.
*************************
11:45 pm
we arrived on LGH's pediatric floor.
I can honestly say that I enjoyed our 3 months away from this place!!
Here's hoping things go well...
*************************
3:36 pm
Jackson has mastered the
"Why are they doing this to me Mama? Please make them stop!" eyes.
Those eyes are forever etched onto my heart.
On a good note, the IV was successful on the 2nd stick, His Salt levels are staying normal despite eatting only 5 onces in 18 hours, his creatnine is only up to 0.5, his fevers are down to 100', his breathing has improvevd and he's been able to nap They are treating a possible UTI until the culutre comes back tomorrow.
*************************
Sat Jan 14th 6:30am
I HATE having to go to work when my kids are sick.
I live with guilt about leaving my sick kid to go take car of someone else's kid
And even more than that, I HATE coming back to the hospital to find him a mess.
It's not Jason's fault... they got ZERO sleep until 4am...
Jackson has bad diarrhea, his diaper was full, he was naked and freezing, his Tylenol at 5am was never given, he drank only 1/2 oz through the night and his bed linens were covered in a poopy residue.
His fever is now only 100.5, we gave the Tylenol, his diaper is changed and they got his morning labs on the first stick.
Doesn't look like we'll be going home today - he only took 1 oz of fluids by mouth last night:(
*********************
10:00 am
I was thinking...
maybe this is a blessing and God's way of giving Jackson a break -
I KNOW that sounds crazy BUT...
He is an active little boy that likes to be on the go SO maybe if he wasn't feeling completely crappy and needing to sleep all day, he'd just be miserable from not being ablt to get around and in pain from his wound.
Maybe...
The wonderful folks here at LGH have LOST HIS URINE CULTURE SPECIMEN so
the Doctors have no choice but to treat him for a UTI.
(This only stinks b/c the Rocephin has given him terrible diarrhea!)
The Dr also thinks that he may have RSV, so they'll be here soon to swab his nose for that test.
He did just eat 2 ozs for me!!!!!
I am waking Jason soon and heading to my parents for some home made soup and muffins (yum).
I wish a certain someone would stop calling me with her problems right now, when my week isn't going so great itself. Though I think she's figuring it out on her own, since her last phone call started with "How is he doing?" before shotgunning straight to her issues.
Oh well...
**********************
2:20 pm
RSV
As far as I am concerned, we could have and should have known this before we were d/c'd from the ER on Thurs night. But, it's not like it makes a big difference anyway. There is no treatment. Perhaps though, they would not have been so aggressive with the UTI treatment.
We'll never know!
The girls were here, but had to leave b/c we're in isolation now (fun!!!).
Jenni takes it so darn hard when our family is split up -
no matter how exciting we make "vacation week at Poppop's" sound.
Jackson still has not eaten a thing in hours...
the nurses will try to feed him later -
Good Luck with that,
Little man is very anti-anyone-but-Mama-or-Dad right now!!
Looks like we'll be here a few more days.
*************************
8:45 pm
Jackson is struggling to breathe now - very coarse breath sounds, he's also cool and clammy.
The Dr is coming in to reassess him.
Definately stable, just not as good as he was a few hours ago (After his pain pill when he decided to eat 5 ozs and start playing!!!)
It's gonna be tough leaving for work in a few minutes!!!
************************
Sunday Jan 15th 6:15 am
I just got back from work. Not hearing anything from Jason after midnight is a GOOD thing.
Both boys are sound asleep, and Jackson is not struggling at all.
They'll be in at any moment to do morning labs.
Now, I need to join them in dreamland...
***********************
12:30 pm
He's been nibbling at his bottle since they D/C'd his IV fluids.
In 5 hours he ate 5 ozs!!!
No longer having fevers.
If he conts to eat, he'll go home tomorrow.
They D/C'd UTI antibiotics b/c of terrible diarrhea and today's CBC pointed towards a virus only.
Creatnine is back to 0.4 , THANK GOD!!!
He still requires Lortab pain meds for uncomfortability.
Jennibelle is a mess with us being a part:(
*************************
Mondy Jan 16th 9:24 am
We were os happy to come yest around 5pm... we even stopped and got dinner on the way.
When we arrived, however, he went bananas...
screaming, crying so we had put him in the tub only to have him turn that horrble mottled look but 10x's darker than I've ever seen. I was in true panic mode at that point.
We fianlly go thim calmed down and eventually even to sleep, but through the night he::
*re-spiked a fever of 101.4, *drank 3 ozs than vomitted it all back up, *drank only another 4 ozs as of now, *was obviously uncomfortable despite Tylenol #3 and *slept only for 1 hour at a time.
So, his Urologist is aware and we have an appt with his Ped at 1240.
EXHAUSTION is in FULL effect.
Lickily, my parents kept the girls another night.
Pic pf day 6 post-op:
*****************************
1:52 pm
I can not wait until this is a distant memory!!
Our Pediatrician removed his catheter so that we didn't have to make the trip up to Geisinger.
We're hoping this will help with his overall comfort,
I'm excited for the girls to come home in a few hours, though I am not excited for all of their energy.
Maybe I'll have them put it to good use and help get this house back in order!!
Hopefully he eats a little something in the next hour or so, so that we can stop worrying about dehydration - again.
*************************
Tuesday Jan 17th 1 pm
I am happy ot say that Jackson is "better"
Still not good, but not real bad anymore.
He's more junky in his nose and lungs than he had been, as the virus workes it's course.
He's not eatting/drinking enough, but I think that he is taking in enough to keep from another hospital admission today.
He is no longer feverish, actually feels a little cool to me.
He has not had pain meds since the middle of the night.
He is definatley in better spirits though... was smiling, playing and eatting soup at noon.
We go to Geisinger early tomrrow morning for another eval.
It was so fun last night having the girls home and playing charades!!!
********************
Wednesday Jan 18th 4:15 pm
We got the A-OK from Jackson's surgery.
So we do not go back to Geisinger until the end of May-
YAY YAY YAY!!!!
His breathing is still rough... very wet cough that sounds like whooping cough.
He also has terrible slimy diarrhea, Which the Drs say is from all the mucous he's swallowing.
BUT he ate close to 30 ozs and was very playful today also:)
Hoping the diarrhea does not dehydrate him and we can soon be done with this whole mess!
*************************
Thursday Jan 19th 7:42 am
Well... he slept well through the night, so hopefully today will be the day!!!
*****************************
10:08 am
Fevers are down to 100!!!!
Cough is less and less (though it still sounds bad)
Nose is running and he's biting everything and whiney at time, but I think that it has to do with the FOUR teeth budding through the top all at once, poor kid!!
Off to get some grocery shopping done!!
Pic of his treat from the grocery store:
Friday Jan 20th 8:44am
BAD night for Jackson!!! He went to bed at 6:30pm very whiny. He was wimpering at 10:30pm and COLD.
COLD .
COLD.
COLD.
COLD.
COLD.
I got sooo sick to my stomach when I touched him.
Memories came flooding...
tears came flooding...
heart started to race...
and nausea hit me like a punch to the gut.
He was pale, cold, clammy-ish, whiney and wouldn't eat.
Off to LGH we flew.
He started to warm up and act better once we were settled in our room.
Ears were normal, Chest xray was either a pneumonia or RSV infiltrate, temp was stable at 98.4, and cath urine was norm.
The ER Dr and Hospital Pediatrican saw him and did not think that blood work was needed -
good and bad thing.
Bad, he gets stuck.
Good, we actually know that it is NOT pneumonia and that his levels are ok AND Mama can calm down.
So, we went home, relieved yet cery confused.
Jump to 6am when he woke very whiney again.
And...
his
diaper
was
completely
DRY.
That is 5.5 hours of not peeing from a boy that just-last-week would pee every 30 mins or so.
What the Heck???
We called LGH - "Go to the nearest ER"
So we headed to Heart of Regional Medical Center.
While answering the DUMB questions and signing 12 papers during registration BEFORE a medical person evaluates you, he obviously peed b/c he became much calmer.
So, the ER Dr that came in 45 mins later says "What do you want me to do for him then?"
Not rude, but more jokingly.
Perhaps I have become a crazed Mama who is terrified of having her son die??
Perhaps I have lost all forms of nursing judgement??
Perhaps I have become a basket case??
Or, just perhaps, I know my son better than anyone else on this really-quite-huge planet and I think that something is wrong. Perhaps...
So, they did a Flu swab (neg), told me that b/c he was once again 98.6 degrees and very playful, blood work was not needed. He had another huge bought of Diarrhea while there and I had them weigh him - He has lost 14 ozs since Monday. She said that it is obviously b/c of the diarrhea and the fact that he is still only eatting 1/2 of what he usually does.
Still, 14 ozs seems like a lot to me and I am worried enough that he will see yet another Dr at 9:50.
I am praying that she will agree to bloodwork and that it will NOT reveal dehydration.
Will anyone out there reading this pray too????
**********************
9:55 pm
Blood work showed that WBC increased only to 12.8 and still leaned towards a virus.
Na, cr and all other labs were WNL.
Thank YOU, Jesus!!!
Jason just texted me... Jackson has eaten 16 ozs since I left for work 6 hours ago!!!!
********************
Saturday Jan 21st 10:30 pm
Jackson had a darn good day today.
I hope this is my last entry to this never-ending-string-of-bad-helth-luck-for-him!!
********************
6 comments:
Thanks for all the updates!! The part about giving him up for the surgery breaks my heart. They just don't understand! And you don't want to let go either. Glad their was no reflux, the stricture was taken care of and no complications!!! Part of the prayers answered....now hoping that there will be no more reasons to put him back in the hospital for a very long time!
Big Hugs Jenn - I had so many of the same feelings for much more minor surgery / tests. Big big hugs and lots of thoughts and prayers for you all.
I appreciate the updates! And I love how you can pick out some positive things to focus on even though you are hyperalert with concern and your heart is aching for your son!
YIKES!! Horrible night!!! Lost his urine culture???? They just discovered it?? I worry about you and Jason getting enough sleep. Wish I could be there....between your parents and I maybe we could have covered the kids and Jackson while you both get some sleep!!
Happy about your Tues, Jan 17th 1 pm update. RSV goes on forever! Charades....fun...I love how your family has so much fun together!!
I am glad to hear that he is doing a bit better. No pain meds for that long is a good thing, right? Give him lots of loves from us. We are always thinking about you guys.
Post a Comment